PALLIATIVE CARE FOR PEDIATRIC PATIENTS: CHALLENGES AND PERCEPTIONS OF NURSES

Abstract

Serious childhood illnesses have a profound impact on both the physical and emotional well-being of children and their families, causing multiple levels of suffering. In view of this, pediatric palliative care emerges as a humanized and multidisciplinary approach aimed at promoting comfort and quality of life. Unlike curative medicine, this approach recognizes therapeutic limits and prioritizes the relief of physical, emotional, social, and spiritual suffering. However, pediatric palliative care still faces challenges such as restricted access, scarcity of resources, and insufficient training of professionals, especially nurses, whose work is essential in assessing and controlling symptoms, in addition to providing emotional support to children and families. This bibliographic and qualitative research analyzed studies published between 2019 and November 2024, based on three categories: approaches and interventions in pediatric palliative care; contributions of this care to quality of life; and its effectiveness in reducing suffering. The results indicate that interventions such as pain management, music therapy, and psychosocial support are essential. Nursing is known for its close bond with patients and families, promoting care and sensitive communication. Furthermore, palliative care has a significant impact on reducing suffering and improving quality of life. The research highlights the importance of expanding and strengthening these services, as well as the need for specific training for professionals. It is concluded that comprehensive, ethical, empathetic and compassionate care is essential to ensure dignity and comfort for children in situations of extreme vulnerability.