THEIRS AND THEIRS: VISIONS AND NARRATIVES IN A UNITED HEALTH SYSTEM (SUS) UNIT

Abstract

This article seeks to understand intersections and differences between the narratives of health professionals and those of caregivers of children with rare health diseases, in a highly complex institution within the SUS; and reflect on actions that can contribute to a more welcoming communication between these two actors and the formulation of guiding policies for a more efficient dialogical exchange. Focus groups and semi-structured interviews were carried out, totaling 36 participants, including doctors, nurses, social workers, managers, cleaning professionals, receptionists and caregivers of children undergoing treatment. The results were treated from a qualitative-quantitative perspective using the MAXQDA software, pointing to three categories: fluidity in communication; vision about the institution; and feelings regarding health, illness and death. As perspectives, we believe that the results described may inspire reflections on Social Determinants of Health and the SUS.