PALLIATIVE CARE IN PATIENTS WITH NEURODEGENERATIVE DISEASES

Authors

  • Christiany Christiny Freitas Andrade UNOPAR
  • Wellington Sousa Tomaz UFDPar
  • Víctor Láio Ferreira Caetano UniAtenas
  • Davi Martins Cutrim UFPI
  • Eulalia Caldas Fantinel Unisul
  • Rafael Bowen Gomes Anhembi Morumbi University image/svg+xml
  • Ana Claudia Rodrigues da Silva ESCS
  • Laís Ramos Santos Southwest Bahia State University image/svg+xml
  • Maryane Lira Nascimento Cefapp
  • Henrique Laerte Ferreira Santos Faculdade Ciências Médicas de Minas Gerais

DOI:

https://doi.org/10.51891/rease.v11i4.18919

Keywords:

Palliative care. Neurodegenerative diseases. Quality of life.

Abstract

Palliative care has been consolidated as an essential approach in the management of patients with neurodegenerative diseases, such as Alzheimer's, Parkinson's and amyotrophic lateral sclerosis (ALS). The integrative review carried out in this study aimed to investigate the benefits of early implementation of palliative care, as well as the challenges faced in its application. The analysis of several studies showed that the early introduction of palliative care contributes to the effective relief of physical and psychological symptoms, improves the quality of life of patients and provides emotional support for both patients and their caregivers. However, the review also identified significant barriers, such as the lack of specialized training among health professionals, the scarcity of integrated protocols and financial and cultural limitations in some contexts. The study reinforces the need for a multidisciplinary approach, continuous education of health professionals and the creation of public policies that promote the integration of palliative care in neurodegenerative diseases from the beginning of diagnosis. In addition, support for caregivers is crucial to avoid emotional and physical exhaustion, ensuring the continuity of quality care.

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Author Biographies

  • Christiany Christiny Freitas Andrade, UNOPAR

    UNOPAR Anhanguera Pitagoras.

  • Wellington Sousa Tomaz, UFDPar

    UFDPar.

  • Víctor Láio Ferreira Caetano, UniAtenas

    UniAtenas.

  • Davi Martins Cutrim, UFPI

    UFPI.

  • Eulalia Caldas Fantinel, Unisul

    Unisul.

  • Rafael Bowen Gomes, Anhembi Morumbi University

    Universidade Anhembi Morumbi.

  • Ana Claudia Rodrigues da Silva, ESCS

    ESCS.

  • Laís Ramos Santos, Southwest Bahia State University

    Universidade Estadual do Sudoeste da Bahia.

  • Maryane Lira Nascimento, Cefapp

    Cefapp.

  • Henrique Laerte Ferreira Santos, Faculdade Ciências Médicas de Minas Gerais

    Faculdade Ciências Médicas de Minas Gerais.

Published

2025-04-23

How to Cite

Andrade, C. C. F., Tomaz, W. S., Caetano, V. L. F., Cutrim, D. M., Fantinel, E. C., Gomes, R. B., Silva, A. C. R. da, Santos, L. R., Nascimento, M. L., & Santos, H. L. F. (2025). PALLIATIVE CARE IN PATIENTS WITH NEURODEGENERATIVE DISEASES. Revista Ibero-Americana de Humanidades, Ciências E Educação, 11(4), 2817-2825. https://doi.org/10.51891/rease.v11i4.18919

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